Condition category
Mental and Behavioural Disorders
Date applied
Date assigned
Last edited
Prospectively registered
Overall trial status
Recruitment status

Plain English Summary

Background and study aims
Mental health recovery stories are first-person accounts of a journey of recovery from mental health problems. This study is developing theory to explain what recovery stories are and how they impact people (including an assessment of benefits and harms). The researchers are drawing on this theory to design an intervention in which selected recovery stories are presented online for the benefit of people experiencing psychosis. This study looks at whether receiving mental health recovery stories presented online improves quality of life for people with psychosis.

Who can participate?
Patients aged 18-65 who are currently experiencing psychosis and using mental health services in England

What does the study involve?
Participants are randomly allocated to either receive treatment as usual (e.g. from their secondary care team), or treatment as usual plus access to a collection of recorded recovery stories presented online. Participants can opt to receive a collection of stories recommended by an algorithm, to search for stories based on a set of tags, or to receive random stories. They can return to the online interface repeatedly over a one-year period. To assess the impact of receiving recovery stories, participant quality of life is assessed at the start of the study and after 1 week, 3 months and 1 year using a short online questionnaire. Online questionnaires are also used to track participants’ perceptions of hope, meaning in life, empowerment, the quality of their social relationships, and their mental health symptoms.

What are the possible benefits and risks of participating?
This study tests an intervention built around recovery stories and will have an impact on future clinical practice. Making a contribution to this evaluation and to the evolution of clinical practice might be perceived as a benefit of participation. Some participants will be randomly selected to receive recovery stories. For those participants, the opportunity to engage with the stories of peers might be perceived as a benefit. Engaging with recovery stories can be distressing, however, and this might be perceived as a risk for some participants.

Where is the study run from?
Nottinghamshire Healthcare NHS Foundation Trust (UK)

When is the study starting and how long is it expected to run for?
August 2018 to April 2022

Who is funding the study?
National Institute for Health Research (UK)

Who is the main contact?
Dr Stefan Rennick-Egglestone

Trial website

Contact information



Primary contact

Dr Stefan Rennick-Egglestone


Contact details

Institute of Mental Health
Triumph Road
United Kingdom
+44 (0)115 82 30926

Additional identifiers

EudraCT number number

Protocol/serial number


Study information

Scientific title

Narrative Experiences ON-line (NEON): a two-arm randomised controlled trial in which people experiencing psychosis receive (arm 1) versus do not receive (arm 2) online access to recorded mental health recovery stories, with a primary outcome measure of quality of life, and secondary outcome measures of hope, empowerment, meaning in life, quality of social relationships and symptomatology



Study hypothesis

Participants receiving mental health recovery stories will have improved quality of life at one-year follow-up compared with those not receiving mental health recovery stories.

Ethics approval

Not provided at time of registration

Study design

Randomised controlled trial

Primary study design


Secondary study design

Randomised controlled trial

Trial setting


Trial type

Quality of life

Patient information sheet

Not available in web format, please use the contact details to request a patient information sheet


Mental health


An interventional trial, with no masking, delivered online with recruitment across England, and 1:1 randomised allocation stratified for severity of condition. Randomisation will be through an algorithm that uses a generic random number generation library.

Arm 1: treatment as usual plus access to a collection of recorded recovery stories presented online for 1 year
Arm 2: treatment as usual for 1 year

Duration of treatment: 1 year. No follow up beyond the end of the treatment period.

Intervention type



Drug names

Primary outcome measure

Health-related quality of life assessed using the Manchester Short Assessment (MANSA) at 1 week, 3 months and 1 year after baseline

Secondary outcome measures

Assessed at 1 week, 3 months and 1 year after baseline:
1. Hope assessed through the Herth Hope Index (Herth, 1992)
2. Meaning in life assessed through the Meaning in Life Questionnaire (Steger et al, 2006)
3. Empowerment assessed through the Mental Health Confidence Scale (Carpinello et al, 2000)
4. Symptomatology assessed through a standardised measure (to be determined)
5. Quality of social relationships assessed through a non-standardised scale to be developed within the NEON study

Overall trial start date


Overall trial end date


Reason abandoned (if study stopped)


Participant inclusion criteria

1. Aged 18-65
2. Any gender
3. Primary or secondary clinical diagnosis of psychosis (including e.g. schizophrenia, schizoaffective disorder, bipolar disorder)
4. Currently using mental health services in England
5. Able to understand English
6. Able to access or be supported to access the internet
7. Able to give online informed consent

Participant type


Age group




Target number of participants


Participant exclusion criteria

Does not meet inclusion criteria

Recruitment start date


Recruitment end date



Countries of recruitment

United Kingdom

Trial participating centre

Nottinghamshire Healthcare NHS Foundation Trust
Duncan Macmillan House Porchester Road Mapperley
United Kingdom

Sponsor information


Nottinghamshire Healthcare NHS Foundation Trust

Sponsor details

Duncan Macmillan House
Porchester Road
United Kingdom
+44 (0)1157484321

Sponsor type

Hospital/treatment centre



Funder type


Funder name

National Institute for Health Research

Alternative name(s)


Funding Body Type

government organisation

Funding Body Subtype

National government


United Kingdom

Results and Publications

Publication and dissemination plan

The trialists will publish the trial protocol, which will incorporate a statistical analysis plan.

Dissemination through:
1. Publication of trial report in a journal with an international audience
2. Publication of a lay summary through the study website

IPD sharing statement
Enquiries should be addressed to, or to the Research and Innovation department of the study sponsor, Nottinghamshire Healthcare NHS Foundation Trust. The trialists will provide a statement clarifying data availability in their published trial protocol.

Intention to publish date


Participant level data

Available on request

Basic results (scientific)

Publication list

2019 qualitative study results in: (added 02/07/2019)

Publication citations

Additional files

Editorial Notes

02/07/2019: Publication reference added.