Privacy policy for the ISRCTN registry

ISRCTN registry is operated by BioMed Central Ltd.

Privacy is an important concern for Internet users, and is something that ISRCTN registry takes very seriously. The following policy tells you how we collect information from you, what we use your information for, and your rights in relation to this.

What personal information is collected about me?

In order to make full use of the services provided by ISRCTN registry, we may ask you to give us information such as your name, address, email address and information about your interests. We call this ‘personal information’.

We may also collect details you provide to us for the purposes of payment, for example credit card details. We call this ‘financial information’.

How do you use this personal information?

We will use the personal information you give us to identify you, contact you and communicate with you.

If you have given us your permission we may also share the information with third parties who may use it to contact you about products and or services offered by third parties other than us.

We will not use financial information for any purpose other than for the payment of amounts due to ISRCTN registry.

What further information does ISRCTN registry track, and why?

In order to offer the best possible service to users, ISRCTN registry tracks the patterns of usage of pages on the site. This enables us to identify the most popular areas. In time, where users have provided details of their research areas of interest, this information can be correlated, helping ISRCTN registry to provide a useful service for scientists and others, offering them the most relevant information based on their areas of interest. Information collected online is stored indefinitely and may be used to assist in processing any transactions, customer service or to customize the site for the member.

Do you share my information with anyone else?

We will only share your personal information with someone else if you have given us your permission to do so or the law says that we have to do this or if we believe that we need to do this to protect and defend our or your rights, property or personal safety.

We will not share financial information with anybody else other than for the purposes of processing your payment to us.

What is ISRCTN registry policy on sharing email addresses with third parties?

User information will only be shared with third parties with the explicit consent of the user. If the user has explicitly opted to receive special offer and product information emails from ISRCTN registry partners, then ISRCTN registry may from time to time email the user on behalf of these partner companies. However, these companies will not be given the user's details without that user's explicit consent.

What is ISRCTN registry policy on emailing its registered members?

ISRCTN registry may contact members from time to time to draw the member's attention to information that may be of interest. Members may opt out or in from receiving such emails when registering as a member, or at any time thereafter by responding to such an email or contacting customer services.

Where is the information stored?

We keep any personal information you send to us on a computer located in the United Kingdom.


We place great importance on the security of your personal information, and we have taken security measures to try to prevent the loss, misuse and alteration of personal information that we collect and hold. While we cannot ensure or guarantee that loss, misuse or alteration of your personal information will not occur, we will do our best to try to make sure that this does not happen.

What is ISRCTN registry policy on using demographic information about users for online advertising purposes?

Support from advertisers is important to ISRCTN registry model of free access. Statistical demographic information about the ISRCTN registry membership may be supplied to advertisers. ISRCTN registry may target online advertising to specific users on the basis of this demographic information, or on the basis of their past behaviour on the site, but information about an individual user will not be passed on to an advertiser without the users' express consent.

What are cookies and why does ISRCTN registry use them?

Cookies are small text files that are placed on your computer by websites that you visit. They are widely used in order to make websites work, or work more efficiently, as well as to provide information to the owners of the site.

Cookies are used by ISRCTN registry to:

  • Enable you to access our website without having to log-in each time you visit.
  • Measure usage and patterns of use within our website.
  • Track movement within the ISRCTN registry site.

Session cookies are also sent from our server to your computer and used for management of your current session on our sites. Session cookies do not remain on your hard drive after you close down your browser. If you do not wish to accept any cookies or wish to be notified when a cookie is sent you can modify your browser preferences – the Help feature in your browser will tell you how to do this. If you decide to restrict or refuse cookies then please be aware that this may impact the functionality of ISRCTN registry’s website. For example, refusing the permanent login cookie that is saved on your computer's hard drive will disable the auto-login feature.

To find out more about cookies, including how to see what cookies have been set and how to manage and delete them, visit or

Google Analytics

The cookies set by Google Analytics are used to collect information about how visitors use our site. We use the information to compile reports and to help us improve the site. The cookies collect information in an anonymous form, including the number of visitors to the site, where visitors have come to the site from and the pages they visited.

To opt out of being tracked by Google Analytics across all websites visit


To obtain information from our users about their experiences with our website, we use an online survey tool, provided and operated by Qualaroo, Inc., 1901 Newport Blvd #175 Costa Mesa, CA 92627, USA (“Qualaroo”). Your participation in a survey is completely voluntary. If you choose to use the survey tool, your internet browser communicates directly with the servers of Qualaroo and the information you provide is directly sent to Qualaroo. For more information on how Qualaroo uses this information, please see the privacy policy of Qualaroo.

Your acceptance of these terms

If you use ISRCTN registry we will assume that you have read through this policy carefully, and understand and accept it. If you do not agree to anything in this policy, then you should not use ISRCTN registry. If we change our privacy policy we will post these changes on this page. If the change in our privacy policy affects the way in which we may use your personal information, then we will do our best to contact you to make sure you agree to this.

Your rights

You have a legal right to a copy of all the personal information that we hold about you. You also have a right to ask us to correct any mistakes in that information. You also have a right to ask us to stop using your personal information at any time. You may amend the information held about you and update your preferences by accessing and changing your profile in the ISRCTN registry website.

Legal responsibilities

ISRCTN registry reserves the right to disclose a member's personal information if required to do so by law, or in good faith and belief that such action is reasonably necessary to comply with legal process, respond to claims, or to protect the rights, property or safety of ISRCTN registry’s employees or members.

Changes to privacy policy

From time to time it may be appropriate for ISRCTN registry to change the privacy policy. ISRCTN registry reserves the right to change the terms of this privacy policy at any time, but will not do so without posting the revised policy on the ISRCTN registry website and alerting the member's attention to the change either by email or on the website homepage.

Who should I contact if I have any questions or concerns about my privacy?

If you have any questions or concerns about your privacy and ISRCTN registry, please contact our customer services team or write to us at:

ISRCTN registry
c/o BioMed Central
Floor 6, 236 Gray's Inn Road

January 2015