Improving cross-agency responses to major incidents

ISRCTN ISRCTN18211730
DOI https://doi.org/10.1186/ISRCTN18211730
IRAS number 292286
Secondary identifying numbers CPMS 49898, IRAS 292286
Submission date
19/07/2021
Registration date
25/01/2022
Last edited
18/05/2022
Recruitment status
No longer recruiting
Overall study status
Completed
Condition category
Mental and Behavioural Disorders
Prospectively registered
Protocol
Statistical analysis plan
Results
Individual participant data
Record updated in last year

Plain English summary of protocol

Background and study aims
The Grenfell Tower fire was one of the biggest peacetime disasters in the UK. The fire was declared a major incident, and a response coordination team was established consisting of government and local partners. The government funded a multi-agency response including a health and wellbeing response. This involved funding both from the local council and from the NHS. In response to the disaster a specialist psychological trauma service was set up, a mental health outreach team, GPs offered enhanced health checks, specialist paediatric and respiratory clinics were established, there was mass screening for post-traumatic stress disorder (PTSD) including door-door, many local third sector organisations received funding for wellbeing work, and there was an extensive programme of work on psychological trauma with local schools as well as considerable third sector activity with local children and young people. During 2019 the Dedicated Service was set up, a service bringing together physical, mental and social care to tower survivors, other evacuated and bereaved families. There was also a large response from the local community including local third sector providers. These all played a major part, delivering services and support and advising and engaging with statutory organisations. The focus of this study is the way that the public bodies responded and supported the recovery of those directly affected by the Grenfell fire in relation to their mental health and psychological wellbeing outcomes, the novel solutions to problems they came up with, the barriers to working across organisations they encountered, how they worked with the third sector and the community, and how they worked together to co-ordinate the response. The aim is to inform planning for major centred incidents in the UK and internationally. The researchers expect to be able to provide recommendations from this project which will inform planning for future incidents. This research aims to learn from Grenfell and feed that learning into future policy guidance, and case study evidence. The project is not a study of fire safety, or of issues around cladding or rehousing or the immediate emergency response.

Who can participate?
Recruitment is not open to the public. Stakeholders or key decision-makers who have been involved in the Grenfell health and wellbeing response and voluntary sector and community leaders who can comment on the response.

What does the study involve?
Qualitative interviews with participants will be triangulated against routinely reported data on activity outcomes and costs and publicly available documents.

What are the possible benefits and risks of participating?
The study will have no benefit to the participants personally but it is hoped that it will improve planning for major incidents, particularly centred events both nationally and internationally. This is not a high-risk study and the researchers do not anticipate any particular risks to participants.

Where is the study run from?
Central and North West London NHS Trust (UK)

When is the study starting and how long is it expected to run for?
June 2019 to June 2022

Who is funding the study?
The National Institute of Health Research (UK)

Who is the main contact?
Dr John Green
john.green@nhs.net

Contact information

Dr John Green
Scientific

Department of Clinical Health Psychology
Clarence Wing
St Mary's Hospital
Praed Street
London
W2 1NY
United Kingdom

ORCiD logoORCID ID 0000-0002-5469-973X
Phone +44 (0)20 33121658
Email john.green@nhs.net

Study information

Study designObservational; Design type: Qualitative
Primary study designObservational
Secondary study designQualitative study
Study setting(s)Other
Study typeOther
Participant information sheet No participant information sheet available
Scientific titleLessons from the health and wellbeing response to the Grenfell Tower Fire: a multi-method approach
Study acronymMILL
Study objectivesThis is a case study therefore it has aims but not a hypothesis. The study aims to draw lessons from the Grenfell Tower disaster and the mental health and well-being response to inform future planning and delivery of services for centred major events. The aim is to inform planning for major centred incidents in the UK and internationally. The researchers expect to be able to provide recommendations from this project which will inform planning for future incidents. It is important to learn from major incidents to improve the management of these nationally and internationally.
Ethics approval(s)Approved 13/05/2021, Research Ethics Committee in the School of Healthcare Sciences at Cardiff University (Cardiff University, Eastgate House 35-43, Newport Road, Cardiff, UK; +44 (0)29 2068 7689; HCAREethics@cardiff.ac.uk), ref: REC799
Health condition(s) or problem(s) studiedMental health
InterventionThere are no interventions in this study and it is not an observational study. This is an evaluative case study.

This study triangulates publicly available documents about the response of statutory organisations to the Grenfell Fire, routinely reported quantitative data on outputs and costs and interviews with those who took key decisions or who were in a position to observe and comment on those decisions. Analysis of documents and interview transcripts will be carried out using a Framework Method approach. The researchers expect to provide a case study report which will incorporate clear recommendations for ways in which planning and delivery can be improved in future centred major events.
Intervention typeOther
Primary outcome measureThe response of statutory organisations to the Grenfell Fire, assessed using:
1. Publicly available documents from [August 2017 – June 2019]
2. Routinely reported quantitative data on outputs and costs from [August 2017 – June 2019]
3. Interviews with those who took key decisions or who were in a position to observe and comment on those decisions from [August 2017 – June 2019]
Secondary outcome measuresThere are no secondary outcome measures
Overall study start date06/06/2019
Completion date30/06/2022

Eligibility

Participant type(s)Mixed
Age groupAdult
SexBoth
Target number of participantsPlanned Sample Size: 35; UK Sample Size: 35
Key inclusion criteriaThe study interview sample is individuals who can cast light on the decisions taken about Grenfell, what determined those decisions, how they were arrived at, what mechanisms were available - particularly for joint working across agencies - and what the impact was. Recruitment is not open to the public. Recruitment will be from four main sources:
1. From the NHS, clinicians, managers and commissioners involved decision making and delivery
2. From the local authority and the schools for which they have a coordinating role, managers, commissioners and headteachers
3. From the voluntary sector those involved in delivering services to those affected by Grenfell, particularly those who received funding of other support from the local authority or the NHS
4. From the local community, opinion leaders who are able to comment on the overall health and wellbeing programme
Key exclusion criteriaThose who were not involved with, or in a position to observe, the Grenfell health and wellbeing response over the period covered by the study
Date of first enrolment12/07/2021
Date of final enrolment30/06/2022

Locations

Countries of recruitment

  • England
  • United Kingdom

Study participating centre

Central and North West London NHS Trust
7a Woodfield Road
London
W9 2NW
United Kingdom

Sponsor information

Central and North West London NHS Foundation Trust
Hospital/treatment centre

NoCloR
1st Floor, Bloomsbury Building
St Pancras Hospital
4 St Pancras Way
London
NW1 0PE
England
United Kingdom

Phone +44 (0)20 3738 8986
Email sponsor.noclor@nhs.net
Website http://www.cnwl.nhs.uk/
ROR logo "ROR" https://ror.org/05drfg619

Funders

Funder type

Government

NIHR Central Commissioning Facility (CCF); Grant Codes: NIHR202366

No information available

Results and Publications

Intention to publish date31/05/2023
Individual participant data (IPD) Intention to shareYes
IPD sharing plan summaryOther
Publication and dissemination planPlanned publication in a high-impact peer-reviewed journal. The researchers will publish the protocol in due course.
IPD sharing planThe datasets generated and/or analysed during the current study during this study will be included in the subsequent results publication. The researchers will not be making copies of the transcripts available for the reasons of confidentiality given the small sample size but they will be publishing the analysed framework and quantitative data and indexing the publicly available documents used in the study.

Editorial Notes

18/05/2022: The following changes have been made:
1. The recruitment end date has been changed from 31/05/2022 to 30/06/2022.
2. The overall trial end date has been changed from 31/05/2022 to 30/06/2022 and the plain English summary has been updated to reflect this change.
03/02/2022: Internal review.
19/07/2021: Trial's existence confirmed by the NIHR.