Improving British South Asian access to memory clinics: the staff perspective
| ISRCTN | ISRCTN35823204 |
|---|---|
| DOI | https://doi.org/10.1186/ISRCTN35823204 |
| IRAS number | 293228 |
| Secondary identifying numbers | IRAS 293228, CPMS 48780 |
- Submission date
- 20/07/2022
- Registration date
- 21/07/2022
- Last edited
- 16/05/2024
- Recruitment status
- No longer recruiting
- Overall study status
- Completed
- Condition category
- Mental and Behavioural Disorders
Plain English summary of protocol
Background and study aims
British South Asians are susceptible to being diagnosed with dementia due to increasing ageing ethnic minorities and South Asians having a higher prevalence of diseases associated with dementia. Despite this British South Asians' referrals to memory services are low and they face barriers to accessing memory clinics and the diagnostic process. This study will aim to investigate what barriers to access staff can identify and what issues they face working with British South Asian service users.
Who can participate?
Any current staff member at a North West based memory service can participate if they are over 18 years of age, can read and speak English, and are able to give informed consent.
What does the study involve?
The study will require participants to partake in an interview over Zoom or Microsoft Teams at a date and time of their choice. The interview will be up to 1 hour long and focus on barriers staff have faced working with ethnic minorities and British South Asian service users and their carers, with a focus on Urdu speakers.
What are the possible benefits and risks of participating?
Participants will be compensated for their time. They may also find it a positive experience
taking part due to the implications of this research possibly benefiting British South Asians with dementia and informing memory services. There are no risks to participating.
Where is the study run from?
The Centre for Primary Care and Health Services Research at the University of Manchester (UK)
When is the study starting and how long is it expected to run for?
September 2017 to June 2023
Who is funding the study?
The Medical Research Council (UK)
Who is the main contact?
Nadine Mirza, nadine.mirza@postgrad.manchester.ac.uk
Contact information
Principal Investigator
5th Floor
Centre for Primary Care and Health Services Research
Williamson Building
Oxford Road
Division of Population Health
School of Health Sciences
Manchester
M13 9QQ
United Kingdom
| Phone | +44 (0)161 275 7638 |
|---|---|
| peter.bower@manchester.ac.uk |
Scientific
5th Floor
Centre for Primary Care and Health Services Research
Williamson Building
Oxford Road
Division of Population Health
School of Health Sciences
Manchester
M13 9QQ
United Kingdom
| Phone | +44 (0)7732395882 |
|---|---|
| nadine.mirza@manchester.ac.uk |
Public
5th Floor
Centre for Primary Care and Health Services Research
Williamson Building, Oxford Road
Division of Population Health
School of Health Sciences
Manchester
M13 9QQ
United Kingdom
| Phone | +44 (0)7732395882 |
|---|---|
| nadine.mirza@manchester.ac.uk |
Study information
| Study design | Qualitative semi-structured interview study |
|---|---|
| Primary study design | Observational |
| Secondary study design | Qualitative semi-structured interview study |
| Study setting(s) | Other |
| Study type | Other |
| Participant information sheet | 42102_PIS_V1.pdf |
| Scientific title | Developing a toolkit through interviews with memory clinic staff on working with South Asian service users |
| Study acronym | DOME Project: Dementia in Ethnic Minorities |
| Study objectives | To investigate the barriers in accessing memory services faced by British Urdu speaking service users and their carers from the staff perspective |
| Ethics approval(s) | Approved 14/12/2020, Research Governance, Ethics and Integrity (2nd Floor Christie Building, The University of Manchester, Oxford Road, Manchester, M13 9PL, UK; +44 (0)161 275 2206/2674; research.ethics@manchester.ac.uk), ref: 2020-10228-17254 |
| Health condition(s) or problem(s) studied | Dementia |
| Intervention | The researchers will be using semi-structured interviews to investigate memory clinic staff's perspectives on barriers faced by British South Asians when accessing memory services and the barriers they face in working with British South Asians. |
| Intervention type | Other |
| Primary outcome measure | Barriers memory clinic staff face working with British Urdu speaking service users and barriers the service users experience, assessed using semi-structured interviews at a single timepoint |
| Secondary outcome measures | There are no secondary outcome measures |
| Overall study start date | 18/09/2017 |
| Completion date | 01/06/2023 |
Eligibility
| Participant type(s) | Health professional |
|---|---|
| Age group | Adult |
| Lower age limit | 18 Years |
| Sex | Both |
| Target number of participants | 30 |
| Total final enrolment | 26 |
| Key inclusion criteria | 1. Currently working as staff for a memory clinic/memory service in the North West 2. Over the age of 18 years 3. Fluent in speaking and reading English 4. Able to give informed consent. |
| Key exclusion criteria | Does not meet the inclusion criteria |
| Date of first enrolment | 09/04/2021 |
| Date of final enrolment | 01/06/2023 |
Locations
Countries of recruitment
- England
- United Kingdom
Study participating centres
Bury New Road
Prestwich
Manchester
M25 3BL
United Kingdom
Ashton-under-lyne
OL6 7SR
United Kingdom
The Countess of Chester Health Park
Liverpool Road
Chester
CH2 1BQ
United Kingdom
Kings Business Park
Prescot
L34 1PJ
United Kingdom
Sceptre Way
Bamber Bridge
Preston
PR5 6AW
United Kingdom
Sponsor information
University/education
Faculty of Biology, Medicine and Health
Room 5.012, Carys Bannister Building
Manchester
M13 9PL
England
United Kingdom
| Phone | +44 (0)1612755436 |
|---|---|
| fbmhethics@manchester.ac.uk | |
| Website | http://www.manchester.ac.uk/ |
"ROR" |
https://ror.org/027m9bs27 |
Funders
Funder type
Research council
Government organisation / National government
- Alternative name(s)
- Medical Research Council (United Kingdom), UK Medical Research Council, MRC
- Location
- United Kingdom
Results and Publications
| Intention to publish date | 01/06/2025 |
|---|---|
| Individual participant data (IPD) Intention to share | Yes |
| IPD sharing plan summary | Available on request |
| Publication and dissemination plan | 1. PhD thesis 2. Public engagement information events 3. Planned publication in a peer-reviewed journal 4. Blogs |
| IPD sharing plan | The datasets generated during and/or analysed during the current study are/will be available upon request from Nadine Mirza (nadine.mirza@manchester.ac.uk). The data would be the raw transcript extracts after anonymisation and initial coding. The data will be available after 01/06/2024 indefinitely. Consent was obtained from participants. All data will be anonymised. |
Study outputs
| Output type | Details | Date created | Date added | Peer reviewed? | Patient-facing? |
|---|---|---|---|---|---|
| Participant information sheet | version 1 | 20/07/2022 | No | Yes | |
| Protocol file | version 1 | 20/07/2022 | No | No | |
| Participant information sheet | version 2.0 | 18/01/2023 | No | Yes |
Additional files
Editorial Notes
16/05/2024: The intention to publish date was changed from 01/06/2024 to 01/06/2025. Total final enrolment added.
18/01/2023: The following changes have been made:
1. A version 2.0 patient information sheet has been uploaded.
2. The public title has been changed from "Understanding and improving barriers to accessing memory services for British South Asians" to "Improving British South Asian access to memory clinics: the staff perspective".
3. The primary study design has been changed from "Observational" to "Other".
12/08/2022: The plain English summary has been updated.
04/08/2022: The CPMS number has been added.
20/07/2022: Trial's existence confirmed by the HRA.
